9

Mar

Does Endometriosis go away at menopause?

Posted by   Published in Endometriosis Awareness
My Family member / Friend / Neighbour / Doctor etc. told me Endometriosis goes away at menopause. Is that true?

Sadly, no.

Endometriosis doesn’t just go away, in the same way that Diabetes or Lupus doesn’t magically go away. Like Diabetes and Lupus, Endometriosis is an autoimmune disease, and as such, it is a lifelong condition.

The experience of those in perimenopause and in menopause runs the gamut from “I have no change in my pain levels”, to “I am now in less pain”, to “I no longer have any pain”.

Some information on the topic can be found at:
https://endometriosis.net/clinical/menopause
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8

Mar

Fact or Myth? People with endo get accused of having a STD

Posted by   Published in Endometriosis Awareness
Fact or Myth?
People suffering from Endometriosis often get accused and/or shamed by doctors of being sexually promiscuous or having sexually transmitted diseases (STDs) instead of referring the person to an endo specialist.

FACT! 🙁
People are so often accused of having STDs or of being sexually promiscuous that endometriosis.org has a FAQ about it:
“Is endometriosis a sexually transmitted disease or infectious?
No. Endometriosis cannot be transferred from one human being to another. The cause of endometriosis is not yet known, but it is not an infectious disease.”
– endometriosis.org/frequently-asked-questions-faq/
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7

Mar

Fact or Myth? “Period pain is normal.”

Posted by   Published in Endometriosis Awareness
Fact or Myth? “Period pain is normal.”

MYTH!
The Endometriosis Research Center writes, “What’s the Big Deal? It’s Just “Killer Cramps,” Right?
Wrong. This mistaken assumption diminishes and invalidates the suffering of every individual with the disease and can lead to feelings of isolation.

Endometriosis isn’t just ‘bad periods.’

Someone can have endometriosis without a uterus or routine menstruation.

See a list of what is NOT normal period pain at:
www.endocenter.org/do-you-have-endo
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6

Mar

Can Endometriosis Be Cured?

Posted by   Published in Endometriosis Awareness
Can Endometriosis Be Cured?

At this time, there is no cure for Endometriosis, since it is not known how exactly Endometriosis develops in the first place.

You may have heard from many pharmaceutical companies, doctors, nutritionists, friends, family, neighbours, co-workers, etc about all the ways in which Endometriosis can be cured. These are all false.

Several websites have information to dispel the myths about cures for Endometriosis:
* endometriosis.org/frequently-asked-questions-faq/
* www.endometriosis-uk.org/faqs
* centerforendo.com/endomyths
* www.endocenter.org/do-you-have-endo/
* www.endowhat.com/educate/
* endometriosisassn.org/top-10-facts-about-endo/
* www.endofound.org/faq
* www.livingwithendometriosis.org/myths/
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5

Mar

How Is Endometriosis Diagnosed?

Posted by   Published in Endometriosis Awareness
How Is Endometriosis Diagnosed?

Per the Endometriosis UK website, “The only definitive way to diagnose endometriosis is by a laparoscopy…If endometriosis is diagnosed, the endometriosis may be treated or removed for further examination during the laparoscopy.”
www.endometriosis-uk.org/getting-diagnosed-0

Per the Johns Hopkins website, “There is no lab test, procedure or imaging that can be done to diagnose endometriosis without surgery.
Doctors may suspect endometriosis based on your history or physical exam, and may use these tools to diagnose endometriosis:
Laparoscopy
Biopsy.”
www.hopkinsmedicine.org/health/conditions-and-diseases/endometriosis
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4

Mar

What Are The Symptoms Of Endometriosis?

Posted by   Published in Endometriosis Awareness

The symptoms of endometriosis vary from person to person, but often include the following:
• Chronic pelvic pain, often extending to the lower back and/or down the legs
• Pelvic pain so bad it’s been compared to childbirth – people who have given birth say the pain of Endometriosis is worse.
• Heavy menstrual cycles
• Mittelschmerz (mid-cycle pain and/or bleeding)
• Pain during intercourse
• Moderate to severe fatigue
• Painful urination or bladder complications during menstruation
• Painful bowel movements during menstruation
• Rectal bleeding before and/or during menstruation
• Diarrhea, constipation or nausea during menstruation
• Frequent Urinary Tract Infections and/or yeast infections
• Infertility
• Low-grade fever
• Migraine headaches
• Nausea
• Dizziness
• Hypoglycemia (low blood sugar)-like symptoms
• Joint pain
• Feeling out of breath or easily winded
• Some people have NO symptoms

(From my page at www.livingwithendometriosis.org/what-is-endometriosis)

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3

Mar

What Causes Endometriosis?

Posted by   Published in Endometriosis Awareness
What Causes Endometriosis?

“At this point in time, we do not know the cause of endometriosis.
Until now several theories of the origin and disease manifestation of endometriosis have been proposed:
* Sampson’s theory of retrograde menstruation
* Immune dysfunction theory
* Theory of MĂźlleriosis
* Embryonic rest theory
* Stem cell theory
* Theories of lymphatic and vascular spread
* Coelomic metaplasia theory
* Genetic factors
* Environmental toxins

Most likely a complex interplay between several of the above-described theories ultimately holds the key to fully unraveling the cause and in turn the cure of this enigmatic disease.”
-Dr. Andrew S. Cook, M.D., Vital Health Endometriosis Center
www.vitalhealth.com/endo-blog/causes-endometriosis
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2

Mar

Upcoming Endometriosis Awareness Events

Posted by   Published in Endometriosis Awareness, Featured

Upcoming Endometriosis Awareness Events:

March 8-10, 2024
Endometriosis Summit
https://theendometriosissummit.com/

March 16-17, 2024
Endo Black Conference
https://www.endoblack.org/events

March 23-24, 2024
Virtual Endometriosis Conference
(Worldwide Endo March)
https://nezhat.org/save-the-date-virtual-endometriosis-conference-2024/

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2

Mar

What Is Endometriosis?

Posted by   Published in Endometriosis Awareness
What Is Endometriosis?
“Endometriosis is an estrogen-dependent, progressive chronic inflammatory disease that affects an estimated 1 in 6-8 of women, girls, transgender, and non-binary people, and an unknown number of men and intersex people as well. In the U.S., this works out to an estimated 10-15 million people and around 400-700 million worldwide.” – Dr. Camran Nezhat, nezhat.org
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31

Mar

Transgender Day Of Visibility

Posted by   Published in Endometriosis Awareness, Featured, Trans Health
“ENDOMETRIOSIS KNOWS NO GENDER.
EVERYONE IN THE ENDO COMMUNITY DESERVES TO FEEL RESPECTED, HEARD, AND WELCOMED JUST AS THEY ARE.
WE SEE YOU AND ARE HERE FOR YOU.”
@endoqueer
https://linktr.ee/endoQueer
YOU ARE VALUED AND LOVED
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