My name is Jessica and I have been suffering with endometriosis for 14 years. To describe my pain, I would say, think of standing in the middle of a busy interstate and being hit by an 18 wheeler. I have tried exercising and the endometriosis diet to alleviate the symptoms, and it has helped tremendously. […]
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10
Mar
Endometriosis In Profile: Jessica
Posted by steph Published in Biographies, Endometriosis Awareness, Featuredno comment
9
Mar
THANK YOU, Donald Unger. I could not have said this better myself. My chronic pain isn’t a crime By Donald N.S. Unger  FEBRUARY 03, 2015 I WILL BE in chronic physical pain until I die. I’m 53, and this has been true for more than half of my life. I accept it. Pain medication is […]
8
Mar
Women with endometriosis need support, not judgement
Posted by steph Published in Endometriosis Awareness, News article, Tips and adviceWomen with endometriosis need support, not judgement March 2 2015, 2.20pm EST by Kate Young, Jane Fisher and Maggie Kirkman Known for years as the “career woman’s disease” based on the idea that women without children develop disease in their reproductive organs, endometriosis is a painful condition thought to affect one in ten women worldwide. […]
7
Mar
Postmenopausal endometriosis: An enigma revisited by Duru Shah J Midlife Health. 2014 Oct-Dec; 5(4): 163–164. doi: 10.4103/0976-7800.145189 PMCID: PMC4264277 Endometriosis is a common gynecological disorder associated with infertility and chronic pelvic pain and traditionally been considered as a disease of the premenopausal years.[1] For pelvic disease alone, three clinical forms have been described: superficial implants […]
6
Mar
Some Women Go To Great Lengths For Relief From Debilitating Monthly Cramps February 17, 2015 11:15 PM By Lisa Sigell (To see the video, click here). LOS ANGELES (CBSLA.com) — For many women, mood swings and pain are a monthly ordeal, but in some cases, the cramping may be so severe women are taking drastic measures […]
5
Mar
Endometriosis In Profile: Brandy Nicole
Posted by steph Published in Biographies, Endometriosis Awareness, FeaturedFor Endometriosis Awareness Month, I have put some questions to my endo sisters, and have invited them to share their journey here with you. Meet Brandy Nicole: How long have you been suffering? I’ve been suffering for 12 years. What does your pain feel like? My pain feels like a white hot knife stabbing and […]
4
Mar
Developing a Noninvasive Test for Endometriosis
Posted by steph Published in Endometriosis Awareness, ResearchDeveloping a Noninvasive Test for Endometriosis UCSF Researchers Identify Patterns of Genetic Activity that Could Help in Early Detection of Disorder By Elizabeth Fernandez on November 21, 2014 Researchers at UC San Francisco have identified patterns of genetic activity that can be used to diagnose endometriosis and its severity, a finding that may offer millions […]
3
Mar
Endometriosis In Profile: Kate
Posted by steph Published in Biographies, Endometriosis Awareness, FeaturedMy name is Kate. I’m 29 years old. I have struggled with horrific periods since I was 14. They placed me on birth control at 15 to help regulate my cycle. At 18 I was diagnosed with PCOS and battled with cysts. If I stop taking birth control my cysts grow large and I gain […]
2
Mar
The Challenges of Living with Invisible Pain or Illness
Posted by steph Published in Chronic Pain, Support and networkingThe Challenges of Living with Invisible Pain or Illness The chronically ill and those who care for them often live in an invisible world Post published by Toni Bernhard J.D. on Sep 28, 2011 in Turning Straw Into Gold. Most of us who live day in and day out with chronic illness — which includes […]
1
Mar
March is International Endometriosis Awareness Month, and our ribbon colour is yellow. You can read all about what Endometriosis is here. You can read about the Myths surrounding endo and treatment here. The reason that it is so important to raise awareness about Endometriosis is that it is considered an invisible illness. An invisible illness […]
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Don't Have Endo? Please Read!
Important Pages
Mankoski Pain Scale
0 - Pain Free
1 - Very minor annoyance -
occasional
minor twinges.
No medication needed.
2 - Minor Annoyance -
occasional
strong twinges.
No medication needed.
3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)
4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.
5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.
6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.
7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)
8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.
9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.
10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.
© Andrea Mankoski
Organisations
- Endo Black
- endoQueer
- The Endo Coalition
- endometriosis.org
- World Endometriosis Society
- Endometriosis UK
- World Endometriosis Foundation
- Center for Endometriosis Care
- Endometriosis Research Center
- Endometriosis Association
- Endometriosis Foundation of America
- Worldwide EndoMarch
- Worldwide Organisations and Support Networks (ongoing update)
Endo Products
- Naturally Hip
- cloth menstrual pads
- Pelvic Pain Solutions
- Microwavable corn-filled cloth
heating pads.
- Endo Awareness swag
- As found on Etsy
Archival Blogroll
(Blogs I connected with from the early days)- Antonia's Epic Endo Journey
- Canadian Girl In Pain
- Chances Our
- Chronic Healing
- Dear Thyroid
- Endo Empowered
- Endo Friendo
- Endo Times
- Endo Trauma
- Endo Writer
- Endometriosis: The Silent Life Sentence
- Field Notes from an Evolutionary Psychologist
- Foxy In The Waiting Room
- Get Well blog
- I Will Not Suffer In Silence
- Lupron Journal
- My Endometriosis Story – Lily Williams Art
- My Journey With Endometriosis
- My Life With Endo & Infertility
- Pop Goes The Feasible
- Reading List & Resources for chronic pain, including endometriosis
- Resilience
- Sallie Speaks
- SansUterus
- Surviving Endo
- The Ins and Outs of Endo
- Whispered Words …
- Yellow Paper Dress
Categories
- Administrative (12)
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- Biology (15)
- Black Endo Health (7)
- Books (3)
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- Chronic Pain (7)
- COVID-19 (2)
- Diet (9)
- Doctors (7)
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- Featured (48)
- Food and Drug Administration (6)
- Government-involvement (9)
- Heart risk (1)
- Hormone Replacement Therapy (HRT) (3)
- Hysterectomy (5)
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- Pseudoscience (1)
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Archives
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- April 2009 (2)
- March 2009 (38)
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- January 2009 (15)
- December 2008 (12)
- November 2008 (8)
- January 2008 (1)
Recent Post
- Trans Endo Siblings – I see you.
- Are redheads more prone to Endometriosis?
- Did you know? Autoimmune Diseases Tend To Cluster
- Finding Others Like Us On The Web
- Research Studies of Endometriosis and the COVID-19 Pandemic
- Endometriosis In Transgender Men Is Still Poorly Understood
- Stats on Endometriosis
- Worldwide Virtual Endometriosis Conference
- Did you know? Racism led to the belief that Endometriosis only develops in white career women who delay childbirth.
- The Mankoski Pain Scale
Recent Comments
- admin in Honouring Henrietta Lacks
- Kathy in A Breakthrough In A Disease That No One Likes To T…
- Jenn in Unbelievable doctors in the 21st century
- admin in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- steph in Peggy Santa Maria - a saint to endo sisters!
- JennM in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…