Click here for the EndoMarch.org website Dr. Linda Giudice stated, “We believe half of endometriosis has a genetic component and half an environmental component.””We believe endometriosis is a complex, multifactorial disorder.””Minimize things with estrogenic compounds” (referenced Environmental Working Group for list of products to avoid which may be estrogenic, which may exacerbate endometriosis, which feeds […]
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- What I Should Have Said
- What Is Endometriosis?
- YouTube – Endometriosis Video Blogs of Yore
18
Jan
For transgender men, pain of menstruation is more than just physical Safety concerns and a lack of access to menstruation products are among the issues trans and gender-nonconforming people face during “that time of the month.” Jan. 11, 2020, 8:38 AM PST By Chloe Atkins When transgender model and activist Kenny Ethan Jones experienced his […]
18
Jan
10
Apr
Increased Heart Disease Risk For Those With Endometriosis
Posted by steph Published in Heart risk, News article, ResearchStudy Puts Endometriosis in Cardiologists’ Sights Patrice Wendling March 31, 2016 BOSTON, MA — Endometriosis raised the summary risk for any coronary heart disease (CHD) by 62% overall and by a staggering 200% in women age 40 or younger in a Nurses’ Health Study 2 analysis. The association between endometriosis and CHD was consistent no matter how […]
24
Mar
How Pets Help People With Chronic Pain November 16, 2015 By Linda Cole Growing up with a parent who suffered from rheumatoid arthritis, I saw firsthand the difficulties someone with chronic pain lives with each day. It can be hard to get up in the morning, do daily chores and give 100% at work. My […]
15
Mar
CDC Has Advice For Primary Care Doctors About Opioids Updated March 15, 201610:35 PM ET Published March 15, 20164:57 PM ET In response to the opioid epidemic that has swept the country, the Centers for Disease Control and Prevention released long-anticipated guidelines on prescribing opioid painkillers such as OxyContin and Percocet. They were published Tuesday […]
9
Mar
Endometriosis in Profile: Nicole
Posted by steph Published in Biographies, Endometriosis Awareness, FeaturedFor Endometriosis Awareness Month, I have put some questions to my endo sisters, and have invited them to share their journey here with you. Meet Nicole: How long you have been suffering? I have been suffering for just over a year. What does your pain feel like? Emotionally, the pain makes me feel like I […]
8
Mar
As seen on the Endometriosis Research Center’s Facebook page: Chinese province grants women leave for menstrual pain By Shen Lu, CNN and Elaine Yu, for CNN Updated 1:06 AM ET, Tue February 16, 2016 Beijing (CNN)Each month, Shao Jinwen’s lower abdomen throbs with a familiar, all-consuming pain. It’s a pain she’s had to endure each […]
6
Mar
‘Pain’ and ‘uncertainty’: A young woman shares her struggle with endometriosis Mar. 4, 2016 at 12:36 PM Chandelis Duster TODAY Endometriosis, the word itself sounds like an incurable disease, and unfortunately that’s true. I should know. I have it. Endometriosis — or “endo” — occurs when cells that line the uterus spread to other places […]
5
Mar
Endometriosis in Profile: a video by Brynn
Posted by steph Published in Biographies, Endometriosis AwarenessSome more endo information, but this is more real. Typically I will only do videos on good days. Well, NO, people need to see it all. The good the bad and the ugly. Some more endo information, but this is more real. Typically I will only do videos on good days. Well, NO, people need […]
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Don't Have Endo? Please Read!
Important Pages
Mankoski Pain Scale
0 - Pain Free
1 - Very minor annoyance -
occasional
minor twinges.
No medication needed.
2 - Minor Annoyance -
occasional
strong twinges.
No medication needed.
3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)
4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.
5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.
6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.
7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)
8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.
9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.
10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.
© Andrea Mankoski
Organisations
- Endo Black
- endoQueer
- The Endo Coalition
- endometriosis.org
- World Endometriosis Society
- Endometriosis UK
- World Endometriosis Foundation
- Center for Endometriosis Care
- Endometriosis Research Center
- Endometriosis Association
- Endometriosis Foundation of America
- Worldwide EndoMarch
- Worldwide Organisations and Support Networks (ongoing update)
Endo Products
- Naturally Hip
- cloth menstrual pads
- Pelvic Pain Solutions
- Microwavable corn-filled cloth
heating pads.
- Endo Awareness swag
- As found on Etsy
Archival Blogroll
(Blogs I connected with from the early days)- Antonia's Epic Endo Journey
- Canadian Girl In Pain
- Chances Our
- Chronic Healing
- Dear Thyroid
- Endo Empowered
- Endo Friendo
- Endo Times
- Endo Trauma
- Endo Writer
- Endometriosis: The Silent Life Sentence
- Field Notes from an Evolutionary Psychologist
- Foxy In The Waiting Room
- Get Well blog
- I Will Not Suffer In Silence
- Lupron Journal
- My Endometriosis Story – Lily Williams Art
- My Journey With Endometriosis
- My Life With Endo & Infertility
- Pop Goes The Feasible
- Reading List & Resources for chronic pain, including endometriosis
- Resilience
- Sallie Speaks
- SansUterus
- Surviving Endo
- The Ins and Outs of Endo
- Whispered Words …
- Yellow Paper Dress
Categories
- Administrative (12)
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- Biology (15)
- Black Endo Health (7)
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- Chronic Pain (7)
- COVID-19 (2)
- Diet (9)
- Doctors (7)
- Endometriosis Awareness (183)
- Featured (48)
- Food and Drug Administration (6)
- Government-involvement (9)
- Heart risk (1)
- Hormone Replacement Therapy (HRT) (3)
- Hysterectomy (5)
- Infertility (1)
- Inspirational (3)
- Insurance industry (3)
- Malpractice (4)
- Medical industry (5)
- Menopause (1)
- News article (107)
- Outrageous (20)
- Pain management (3)
- Pharmaceuticals (13)
- Pseudoscience (1)
- Research (76)
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Archives
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- November 2008 (8)
- January 2008 (1)
Recent Post
- Trans Endo Siblings – I see you.
- Are redheads more prone to Endometriosis?
- Did you know? Autoimmune Diseases Tend To Cluster
- Finding Others Like Us On The Web
- Research Studies of Endometriosis and the COVID-19 Pandemic
- Endometriosis In Transgender Men Is Still Poorly Understood
- Stats on Endometriosis
- Worldwide Virtual Endometriosis Conference
- Did you know? Racism led to the belief that Endometriosis only develops in white career women who delay childbirth.
- The Mankoski Pain Scale
Recent Comments
- admin in Honouring Henrietta Lacks
- Kathy in A Breakthrough In A Disease That No One Likes To T…
- Jenn in Unbelievable doctors in the 21st century
- admin in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- steph in Peggy Santa Maria - a saint to endo sisters!
- JennM in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…