MYTH! The Endometriosis Research Center (ERC) says:“Hysterectomy – not a cure and inappropriate for young women!†Endometriosis.org says:“Hysterectomy (surgical removal of the uterus) does not guarantee relief from endometriosis-related symptoms and can neither be classified as a “treatment“, nor as a “cure†for endometriosis. Furthermore, surgery is surgeon dependent, and if all the endometriosis is […]
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4
Mar
Endo Awareness Month – Does hysterectomy cure endometriosis?
Posted by admin Published in Uncategorizedno comment
3
Mar
Fact or Myth? Endometriosis is a rare disease. Myth! “Endometriosis is one of the most common gynecological diseases, affecting more than 5.5 million women in North America alone.†– The National Institute of Child Health and Human Development (NICHD).“It is estimated that between 2 percent and 10 percent of American women – or 5.5 million […]
2
Mar
Endo affects our trans siblings, too.
Posted by admin Published in Endometriosis Awareness, Trans HealthThis year during Endometriosis Awareness Month, I would like to see people reprogram their use of gender-specifics. I would like us to remove the words ‘women’, ‘girl’, ‘ladies’, ‘female’, etc from our speech when we talk about Endometriosis. Replace with generic ‘people’ in order to respect our endo siblings in the trans community. In times […]
2
Mar
Endo Awareness Month – Does Negative Thinking Cause Painful Periods?
Posted by admin Published in UncategorizedMYTH!!!! Dr. Joseph W. Krotec and RN Sharon Perkins write in Endometriosis for Dummies: “Even doctors used to believe that endometriosis was a psychological disease. The prevailing attitude was that, if you just stopped thinking about yourself all the time, all the pain would disappear. Some doctors actually believed that a woman’s positive attitude would […]
1
Mar
Endometriosis is an autoimmune illness that one is born with. Doctors do not know what causes endometriosis – there may be several causes. So much misinformation and ignorance still exists about the origins of endo that many people spend years being dismissed, degraded, and mis-diagnosed by doctors before surgical diagnosis confirms endometriosis. People spend many more years being treated like […]
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Important Pages
Mankoski Pain Scale
0 - Pain Free
1 - Very minor annoyance -
occasional
minor twinges.
No medication needed.
2 - Minor Annoyance -
occasional
strong twinges.
No medication needed.
3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)
4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.
5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.
6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.
7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)
8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.
9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.
10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.
© Andrea Mankoski
Organisations
- Endo Black
- endoQueer
- The Endo Coalition
- endometriosis.org
- World Endometriosis Society
- Endometriosis UK
- World Endometriosis Foundation
- Center for Endometriosis Care
- Endometriosis Research Center
- Endometriosis Association
- Endometriosis Foundation of America
- Worldwide EndoMarch
- Worldwide Organisations and Support Networks (ongoing update)
Endo Products
- Naturally Hip
- cloth menstrual pads
- Pelvic Pain Solutions
- Microwavable corn-filled cloth
heating pads.
- Endo Awareness swag
- As found on Etsy
Archival Blogroll
(Blogs I connected with from the early days)- Antonia's Epic Endo Journey
- Canadian Girl In Pain
- Chances Our
- Chronic Healing
- Dear Thyroid
- Endo Empowered
- Endo Friendo
- Endo Times
- Endo Trauma
- Endo Writer
- Endometriosis: The Silent Life Sentence
- Field Notes from an Evolutionary Psychologist
- Foxy In The Waiting Room
- Get Well blog
- I Will Not Suffer In Silence
- Lupron Journal
- My Endometriosis Story – Lily Williams Art
- My Journey With Endometriosis
- My Life With Endo & Infertility
- Pop Goes The Feasible
- Reading List & Resources for chronic pain, including endometriosis
- Resilience
- Sallie Speaks
- SansUterus
- Surviving Endo
- The Ins and Outs of Endo
- Whispered Words …
- Yellow Paper Dress
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Recent Post
- Trans Endo Siblings – I see you.
- Are redheads more prone to Endometriosis?
- Did you know? Autoimmune Diseases Tend To Cluster
- Finding Others Like Us On The Web
- Research Studies of Endometriosis and the COVID-19 Pandemic
- Endometriosis In Transgender Men Is Still Poorly Understood
- Stats on Endometriosis
- Worldwide Virtual Endometriosis Conference
- Did you know? Racism led to the belief that Endometriosis only develops in white career women who delay childbirth.
- The Mankoski Pain Scale
Recent Comments
- admin in Honouring Henrietta Lacks
- Kathy in A Breakthrough In A Disease That No One Likes To T…
- Jenn in Unbelievable doctors in the 21st century
- admin in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- steph in Peggy Santa Maria - a saint to endo sisters!
- JennM in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…