“Endometriosis knows no gender. Everyone in the endo community deserves to feel respected, heard and welcomed just as they are. We see you and are here for you.” Find endoQueer on Instagram, Facebook, Twitter and their website. I am a one-person show at LivingWithEndometriosis, and I agree with and embrace what endoQueer has to say. […]
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- YouTube – Endometriosis Video Blogs of Yore
31
Mar
no comment
28
Mar
Do hormone therapies cure endometriosis?
Posted by admin Published in Endometriosis Awareness, FeaturedFact or Myth? “Hormone therapy cures endometriosis.” MYTH! endometriosis.org writes:“Synthetic hormonal drugs like the pill, Provera, Danazol and Zoladex have been used for many years to ‘treat’ endometriosis. However, these hormonal treatments do not have any long-term effect on the disease itself. They do temporarily suppress (quieten) the symptoms, but only while the drugs are […]
27
Mar
Shout out to Endometriosis Network Canada!
Posted by admin Published in Endometriosis Awareness, Featured, Trans HealthDuring today’s segment of the Worldwide Endometriosis March, Katie Luciani of The Endometriosis Network Canada echoed my sentiments back on March 2, 2021 about gendered language, only they’ve been saying it for almost a year now! <3
27
Mar
Worldwide Endometriosis March – Day 2
Posted by admin Published in Endometriosis Awareness, FeaturedHappening Now! The virtual Worldwide Endometriosis March! DAY 2 – PART 1: DAY 2 – PART 2:
26
Mar
Worldwide Endometriosis March – Day 1
Posted by admin Published in Endometriosis Awareness, FeaturedHappening Now! The virtual Worldwide Endometriosis March! DAY 1 – PART 1: DAY 1 – PART 2:
26
Mar
On advertising Endo Organisations’ events for Endometriosis Awareness Month
Posted by admin Published in AdministrativeAdmin’s Note: I was really irked that I didn’t get any notifications about the Worldwide Endometriosis March AGAIN this year until two days before the event. They appear to have a pattern of not effectively using social media to get the word out enough ahead of time. The first time I saw anything about it […]
10
Mar
Does endo only affect white people who delay child-bearing?
Posted by admin Published in Endometriosis AwarenessMYTH! The Endometriosis Summit writes: “Structural racism and implicit bias permeates many institutions throughout America, devastating the lives of African Americans. Healthcare, made of the medical institutions that reign under its umbrella, is no exception. The field of gynecology has an especially egregious history of horrific crimes of racial nature. The proclaimed “father of gynecology,†[…]
10
Mar
I have updated information on two pages on this site – Support and Endo Organisations – which are always found in the header bar above. And I have updated the Organisations sidebar on the right of this page which contains the same information as the Organisations page itself.
7
Mar
Myth! endometriosis.org writes:“‘Women’s problems’ perplexed nineteenth century doctors, who saw them as indicative of women’s unstable and delicate psychological constitutions. Even though attitudes towards women improved during the twentieth century, some of the old beliefs still linger unconsciously, and affect the medical profession’s attitudes towards women’s complaints, including period pain. “As a result, while seeking […]
5
Mar
Can special diets, herbal supplements or exercise cure endometriosis?
Posted by admin Published in UncategorizedMYTH! EndoAlert (site no longer exists) wrote:“Anyone claiming to be able to cure endometriosis with whatever product they are selling should be considered skeptically. It’s improper to say they “cure” the disease as there is no cure. What they are doing, if successful, is relieving the symptoms of endometriosis. It is common sense that a […]
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Don't Have Endo? Please Read!
Important Pages
Mankoski Pain Scale
0 - Pain Free
1 - Very minor annoyance -
occasional
minor twinges.
No medication needed.
2 - Minor Annoyance -
occasional
strong twinges.
No medication needed.
3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)
4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.
5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.
6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.
7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)
8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.
9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.
10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.
© Andrea Mankoski
Organisations
- Endo Black
- endoQueer
- The Endo Coalition
- endometriosis.org
- World Endometriosis Society
- Endometriosis UK
- World Endometriosis Foundation
- Center for Endometriosis Care
- Endometriosis Research Center
- Endometriosis Association
- Endometriosis Foundation of America
- Worldwide EndoMarch
- Worldwide Organisations and Support Networks (ongoing update)
Endo Products
- Naturally Hip
- cloth menstrual pads
- Pelvic Pain Solutions
- Microwavable corn-filled cloth
heating pads.
- Endo Awareness swag
- As found on Etsy
Archival Blogroll
(Blogs I connected with from the early days)- Antonia's Epic Endo Journey
- Canadian Girl In Pain
- Chances Our
- Chronic Healing
- Dear Thyroid
- Endo Empowered
- Endo Friendo
- Endo Times
- Endo Trauma
- Endo Writer
- Endometriosis: The Silent Life Sentence
- Field Notes from an Evolutionary Psychologist
- Foxy In The Waiting Room
- Get Well blog
- I Will Not Suffer In Silence
- Lupron Journal
- My Endometriosis Story – Lily Williams Art
- My Journey With Endometriosis
- My Life With Endo & Infertility
- Pop Goes The Feasible
- Reading List & Resources for chronic pain, including endometriosis
- Resilience
- Sallie Speaks
- SansUterus
- Surviving Endo
- The Ins and Outs of Endo
- Whispered Words …
- Yellow Paper Dress
Categories
- Administrative (12)
- Alternative medicine (4)
- Autoimmune (5)
- Biographies (13)
- Biology (15)
- Black Endo Health (7)
- Books (3)
- Cancer risk (19)
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- Chronic Pain (7)
- COVID-19 (2)
- Diet (9)
- Doctors (7)
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- Featured (48)
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- Government-involvement (9)
- Heart risk (1)
- Hormone Replacement Therapy (HRT) (3)
- Hysterectomy (5)
- Infertility (1)
- Inspirational (3)
- Insurance industry (3)
- Malpractice (4)
- Medical industry (5)
- Menopause (1)
- News article (107)
- Outrageous (20)
- Pain management (3)
- Pharmaceuticals (13)
- Pseudoscience (1)
- Research (76)
- Suicide (2)
- Support and networking (8)
- Tips and advice (11)
- Trans Health (10)
- Uncategorized (10)
Archives
- March 2024 (29)
- March 2023 (6)
- March 2022 (9)
- April 2021 (1)
- March 2021 (15)
- November 2020 (1)
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- January 2020 (2)
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- March 2017 (12)
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- March 2016 (8)
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- March 2015 (17)
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- March 2013 (31)
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- March 2012 (9)
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- April 2010 (8)
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- November 2009 (4)
- October 2009 (2)
- September 2009 (3)
- August 2009 (4)
- June 2009 (2)
- April 2009 (2)
- March 2009 (38)
- February 2009 (9)
- January 2009 (15)
- December 2008 (12)
- November 2008 (8)
- January 2008 (1)
Recent Post
- Trans Endo Siblings – I see you.
- Are redheads more prone to Endometriosis?
- Did you know? Autoimmune Diseases Tend To Cluster
- Finding Others Like Us On The Web
- Research Studies of Endometriosis and the COVID-19 Pandemic
- Endometriosis In Transgender Men Is Still Poorly Understood
- Stats on Endometriosis
- Worldwide Virtual Endometriosis Conference
- Did you know? Racism led to the belief that Endometriosis only develops in white career women who delay childbirth.
- The Mankoski Pain Scale
Recent Comments
- admin in Honouring Henrietta Lacks
- Kathy in A Breakthrough In A Disease That No One Likes To T…
- Jenn in Unbelievable doctors in the 21st century
- admin in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- steph in Peggy Santa Maria - a saint to endo sisters!
- JennM in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…