Ignored, misdiagnosed and denied surgery: My endometriosis journey

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Don't Have Endo? Please Read!

• What Is Endometriosis?
  
  
• The Letter From Survivors
  
  
• Public Service Announcement!
  
  
• We Are Not Seekers
  
  
• What I Should Have Said
  
  
• "...but have you tried..."
  
  
• Sick Humor: The top ten worst
  suggestions commonly given to
  someone with a chronic illness
  
  
• Our Life In Comics

Important Pages

• Endopaedia
  
  
• Research and Medical Journals
  
  
• Myths about Endometriosis
  
  
• YouTube Video Blogs of Yore
  
  
• Applying For Disability
  
  
• Be Aware!
  
  
• Endo and Menopause
  
  
• Is Endo A Cancer?
  
  
• Job Discrimination
  
  
• Fallen Endo Siblings

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.

10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.

© Andrea Mankoski

Organisations

• Endo Black
  
  
• endoQueer
  
  
• The Endo Coalition
  
  
• endometriosis.org
  
  
• World Endometriosis Society
  
  
• Endometriosis UK
  
  
• World Endometriosis Foundation
  
  
• Center for Endometriosis Care
  
  
• Endometriosis Research Center
  
  
• Endometriosis Association
  
  
• Endometriosis Foundation of America
  
  
• Worldwide EndoMarch
  
  
• Worldwide Organisations and Support Networks (ongoing update)

Endo Products

• Naturally Hip
  ^{- cloth menstrual pads}
  
  
• Pelvic Pain Solutions
  ^{- Microwavable corn-filled cloth
  heating pads.}
  
  
• Endo Awareness swag
  ^{- As found on Etsy}
  
  

Archival Blogroll

• Antonia's Epic Endo Journey
• Canadian Girl In Pain
• Chances Our
• Chronic Healing
• Dear Thyroid
• Endo Empowered
• Endo Friendo
• Endo Times
• Endo Trauma
• Endo Writer
• Endometriosis: The Silent Life Sentence
• Field Notes from an Evolutionary Psychologist
• Foxy In The Waiting Room
• Get Well blog
• I Will Not Suffer In Silence
• Lupron Journal
• My Endometriosis Story – Lily Williams Art
• My Journey With Endometriosis
• My Life With Endo & Infertility
• Pop Goes The Feasible
• Reading List & Resources for chronic pain, including endometriosis
• Resilience
• Sallie Speaks
• SansUterus
• Surviving Endo
• The Ins and Outs of Endo
• Whispered Words …
• Yellow Paper Dress

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