Research Study – Information Found On The Internet About Endometriosis Found via Antonia Boyton and the Endometriosis Association of Ireland This Study is Open Worldwide As part of Kathleen King’s (Chair Endometriosis Association of Ireland) MSc study you are invited to take part in research into information found on the internet about #endometriosis. This is an […]
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24
Mar
Research Study – Information Found On The Internet About Endometriosis
Posted by admin Published in Featured, Researchno comment
10
Mar
Why It’s Harder For People Of Colour To Get Diagnosed With Endometriosis By AIMÉE GRANT CUMBERBATCH March 7, 2019 176 million people worldwide have endometriosis. Despite its prevalence, many people don’t know what it is. It’s not talked about, it’s under-researched, and it’s persistently underfunded. For Endometriosis Awareness Month, Bustle UK is hearing from people […]
7
Mar
This professor suffers from a mystery disease, so she developed an app to track its effects Endometriosis gets very little U.S. federal funding for research, so Professor Noemie Elhadad developed the Phendo app to help women worldwide. BY COURTNEY BIGGS 3/1/2019 An estimated 200 million women suffer from endometriosis worldwide. It’s a disease as common as diabetes, but […]
5
Mar
What’s It Like Living With Endometriosis? 6 People With The Condition Share Their Story By AIMÉE GRANT CUMBERBATCH March 5, 2019 One in ten people who menstruate in the UK have endometriosis. Despite its prevalence, many people don’t know what it is. It’s not talked about, it’s under-researched, and it’s persistently underfunded. For Endometriosis Awareness Month, Bustle […]
4
Mar
Relation Between Hysterectomy, Oophorectomy and the Risk of Incident Differentiated Thyroid Cancer The E3N Cohort Agathe Guenego; Sylvie Mesrine; Laureen Dartois; Laurence Leenhardt; Francoise Clavel-Chapelon; Marina Kvaskoff; Marie-Christine Boutron-Ruault; Fabrice Bonnet DISCLOSURES Clin Endocrinol. 2019;90(2):360-368. You can download the PDF and references here. Abstract and Introduction Abstract Background: Thyroid cancers are threefold more frequent in women than […]
3
Mar
Time to Redefine Endometriosis Including Its Pro-fibrotic Nature
Posted by admin Published in ResearchTime to Redefine Endometriosis Including Its Pro-fibrotic Nature P. Vigano; M. Candiani; A. Monno; E. Giacomini; P. Vercellini; E. Somigliana Hum Reprod. 2018;33(3):347Â352. You can get the PDF here. Abstract and Introduction Abstract Endometriosis is currently defined as presence of endometrial epithelial and stromal cells at ectopic sites. This simple and straightforward definition has served […]
2
Mar
Ignored, misdiagnosed and denied surgery: My endometriosis journey
Posted by admin Published in Endometriosis Awareness, News articleIgnored, misdiagnosed and denied surgery: My endometriosis journey Shyla Barry13:32, Feb 07 2019 One day, at the tender age of 13, I was in class when I was suddenly crippled by the most excruciating sharp pain in my stomach and left screaming and breathless. At the time I had no experience with menstrual cramps and […]
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Don't Have Endo? Please Read!
Important Pages
Mankoski Pain Scale
0 - Pain Free
1 - Very minor annoyance -
occasional
minor twinges.
No medication needed.
2 - Minor Annoyance -
occasional
strong twinges.
No medication needed.
3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)
4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.
5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.
6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.
7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)
8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.
9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.
10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.
© Andrea Mankoski
Organisations
- Endo Black
- endoQueer
- The Endo Coalition
- endometriosis.org
- World Endometriosis Society
- Endometriosis UK
- World Endometriosis Foundation
- Center for Endometriosis Care
- Endometriosis Research Center
- Endometriosis Association
- Endometriosis Foundation of America
- Worldwide EndoMarch
- Worldwide Organisations and Support Networks (ongoing update)
Endo Products
- Naturally Hip
- cloth menstrual pads
- Pelvic Pain Solutions
- Microwavable corn-filled cloth
heating pads.
- Endo Awareness swag
- As found on Etsy
Archival Blogroll
(Blogs I connected with from the early days)- Antonia's Epic Endo Journey
- Canadian Girl In Pain
- Chances Our
- Chronic Healing
- Dear Thyroid
- Endo Empowered
- Endo Friendo
- Endo Times
- Endo Trauma
- Endo Writer
- Endometriosis: The Silent Life Sentence
- Field Notes from an Evolutionary Psychologist
- Foxy In The Waiting Room
- Get Well blog
- I Will Not Suffer In Silence
- Lupron Journal
- My Endometriosis Story – Lily Williams Art
- My Journey With Endometriosis
- My Life With Endo & Infertility
- Pop Goes The Feasible
- Reading List & Resources for chronic pain, including endometriosis
- Resilience
- Sallie Speaks
- SansUterus
- Surviving Endo
- The Ins and Outs of Endo
- Whispered Words …
- Yellow Paper Dress
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Recent Post
- Trans Endo Siblings – I see you.
- Are redheads more prone to Endometriosis?
- Did you know? Autoimmune Diseases Tend To Cluster
- Finding Others Like Us On The Web
- Research Studies of Endometriosis and the COVID-19 Pandemic
- Endometriosis In Transgender Men Is Still Poorly Understood
- Stats on Endometriosis
- Worldwide Virtual Endometriosis Conference
- Did you know? Racism led to the belief that Endometriosis only develops in white career women who delay childbirth.
- The Mankoski Pain Scale
Recent Comments
- admin in Honouring Henrietta Lacks
- Kathy in A Breakthrough In A Disease That No One Likes To T…
- Jenn in Unbelievable doctors in the 21st century
- admin in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- steph in Peggy Santa Maria - a saint to endo sisters!
- JennM in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…