This morning I read a three-day old story on NPR, entitled “Patients Turn To Online Community For Help Healing“. In that segment, three websites were plugged: Microsoft’s My Health Info, Google Health, and Patients Like Me. I decided to check these sites out. I was thwarted immediately upon reaching Microsoft’s My Health Info page, because […]
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20
Nov
Examining online health records-keeping
Posted by steph Published in News article, Support and networkingno comment
19
Nov
Online support groups for endometriosis
Posted by steph Published in Administrative, Support and networkingTwo days ago, I was told about another online support group out there, so I want to make mention of it – it is called MDJunction. It stands for “Making A Difference” Junction. I joined today. I belong to a number of online support groups for endometriosis, and I check in when I can. I […]
9
Nov
Part II: Overpriced poison? Posted: Nov 2, 2009 03:53 PM Updated: Nov 2, 2009 06:22 PM 28-year-old Rachelle Fenner finds it hard some days to just get out of bed. “Right now, my face is numb, my shoulders are numb, I feel dizzy, I just don’t ever feel good.” “It’s horrible,” says 30-year-old Mary Orseno. […]
9
Nov
Many thanks to Melissa Ralston, moderator of the Goddesses of Endometriosis email list, for finding this hair-raising story. Overpriced Poison? Posted: Oct 30, 2009 04:15 PM Updated: Nov 1, 2009 11:56 PM Doctors and a drug company may be getting rich at the expense of patients and taxpayers. Devastating side effects kept secret and ineffective […]
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Important Pages
Mankoski Pain Scale
0 - Pain Free
1 - Very minor annoyance -
occasional
minor twinges.
No medication needed.
2 - Minor Annoyance -
occasional
strong twinges.
No medication needed.
3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)
4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.
5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.
6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.
7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)
8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.
9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.
10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.
© Andrea Mankoski
Organisations
- Endo Black
- endoQueer
- The Endo Coalition
- endometriosis.org
- World Endometriosis Society
- Endometriosis UK
- World Endometriosis Foundation
- Center for Endometriosis Care
- Endometriosis Research Center
- Endometriosis Association
- Endometriosis Foundation of America
- Worldwide EndoMarch
- Worldwide Organisations and Support Networks (ongoing update)
Endo Products
- Naturally Hip
- cloth menstrual pads
- Pelvic Pain Solutions
- Microwavable corn-filled cloth
heating pads.
- Endo Awareness swag
- As found on Etsy
Archival Blogroll
(Blogs I connected with from the early days)- Antonia's Epic Endo Journey
- Canadian Girl In Pain
- Chances Our
- Chronic Healing
- Dear Thyroid
- Endo Empowered
- Endo Friendo
- Endo Times
- Endo Trauma
- Endo Writer
- Endometriosis: The Silent Life Sentence
- Field Notes from an Evolutionary Psychologist
- Foxy In The Waiting Room
- Get Well blog
- I Will Not Suffer In Silence
- Lupron Journal
- My Endometriosis Story – Lily Williams Art
- My Journey With Endometriosis
- My Life With Endo & Infertility
- Pop Goes The Feasible
- Reading List & Resources for chronic pain, including endometriosis
- Resilience
- Sallie Speaks
- SansUterus
- Surviving Endo
- The Ins and Outs of Endo
- Whispered Words …
- Yellow Paper Dress
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Recent Post
- Trans Endo Siblings – I see you.
- Are redheads more prone to Endometriosis?
- Did you know? Autoimmune Diseases Tend To Cluster
- Finding Others Like Us On The Web
- Research Studies of Endometriosis and the COVID-19 Pandemic
- Endometriosis In Transgender Men Is Still Poorly Understood
- Stats on Endometriosis
- Worldwide Virtual Endometriosis Conference
- Did you know? Racism led to the belief that Endometriosis only develops in white career women who delay childbirth.
- The Mankoski Pain Scale
Recent Comments
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- I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- steph in Peggy Santa Maria - a saint to endo sisters!
- JennM in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…